I’ve spent the past two years writing on this blog (often not well) hoping to find some answers and hoping that maybe others would find some truth in my truth. I’ve had some pretty crazy experiences lately that have made me realize just how contracted my life has been. In these twenty four years I’ve been given the privilege of seeing and living many different kinds of lives. I’ve been the athlete. I’ve been the jock. I’ve been the ladies man. I’ve been the rock-star. I’ve been the ‘genius’. I’ve been the inspiration. I’ve been the loser. I’ve been friendless. I’ve been despised. I’ve been stupid. I’ve been the cripple and the burden. I’ve lived with hundreds of friends, and an in-tact family, and I’ve lived with zero friends and no family.
There’s this Becket quote that I like: there’s man all over for you, blaming on his shoes the fault of his feet. We always try to look for some meaning in the madness; some purpose. It’s an inherently human thing to do. We all at one point think that there is some great purpose for us; that we’re some integral part of this grand design. We all hop we’re that special, and that’s one of those hopes that’s truly difficult to break away from, and incredibly hard to lose.
When I think about my purpose, and how ‘important’ I must be, I think about the disabled children abandoned because their parents didn’t want them; something that’s less frequent now, but incredibly common in the past. What about the kids and adults right now starving to death. What about the people slain for no reason but to satiate some sick sadistic warlord or sociopaths desires? When I think about these people I find it very difficult to see the great meaning in their lives. And I find it even more difficult to justify my desire to find one in my own.
I don’t know exactly what the future holds for me, but like everyone else I have a fairly general idea of the direction I’m headed in. I know that I’m going to have surgery on my spine to treat my Syrinx. I know that I’m going to remain disabled. I know that things are going to remain hard. When I think of my future I am stressed, but it’s not the surgery or the disability that make me feel stressed, it’s the lack of support and connection with others. And it’s the knowledge that the family I do have left aren’t going to make the world a much better place.
Recently my brother moved out, leaving me and my dog alone in this apartment. It’s made me really feel worthless, and really question the belief I used to have that I could find purpose and meaning. It was the hope that my brother would see my world and it would make him a better person that gave me purpose (I know that if I were magically cured right now I would go on to do wonderful things; the stuff that used to stress me out and prevent me from fulfilling my potential (the insecurity, the money-stress) pales in comparison to the stress of not being able to walk, or work, or really live. And so I thought perhaps it was logical to conclude that since he’s healthy, he could take that truth and completely transform his life; he could do the good things he is capable of doing). But now I don’t know. It’s the actions that people make and the things that people believe and do that determine if the world is just and good. People make the meaning and purpose, not fate, not the ‘gods’, and certainly not ourselves. A person may be able to will themselves to greatness, but how you define greatness and the metrics you use to measure it might reveal that the greatest thing is to be good, not rich, or envied, or feared. Take the Kennedy family. Many revere them, and are inspired by them. But many people don’t know about Rose Kennedy. They had her lobotomized, and then institutionalized for life. She was very rarely visited. She was alone, to suffer and live out her existence; a causality for the greatness of others. And for what? Did the Kennedy’s change the world forever? Or was their greatness just as fleeting as the law student who passes his Bar, or my brother who gets the raise he’s been working towards.
The things we desire so much in this world are fleeting. I wanted nothing more than a nice car and fame when I was a kid. I pictured myself loved and wealthy. I am so far removed from that future I once longed for. If you had told my 14 year old self that in ten years I’d be disabled, in chronic pain, completely abandoned and alone, with too many scars to count, you would have crippled me. But I’m glad in some weird way that this has happened to me. It’s given me the privilege of seeing what it means to truly have a meaningful life. I am able to bear being sick and disabled and having such an uncertain future. I can find the good in those things and they are experiences and lives that I can use to paint a broader narrative with. It’s the lack of social connection. The lack of love and that opportunity to make someone better than yourself that comes with being in a family that makes me feel like nothing matters and I can’t possibly move on.
If my life has some purpose perhaps it’s to share that one small truth: being good (moral and virtuous – loyal, empathetic, temperant, prudent, just) and investing your future in others is the thing we need most in this life, and the thing we cannot live without. We can survive, and often thrive, without painlessness, without mobility, and without health. We cannot survive for very long (and we cannot really, truly thrive) without the meaning and the purpose relationships and connection to and with good people provides. It sucks going through hard things alone. But it sucks infinitely more going through them needlessly. Like Rose Kennedy, I don’t have to go through this stuff. It’s not actually going through it that stings the most (like I said before, humans are incredibly resilient), it’s the reason why I have to go through it that does. And that reason is the reason why people feel like the world is a harsh place filled with meaningless suffering. For me, that reason is that my brothers don’t understand that being good and moral means being there for others. It means just supporting them and loving them; calling them when they’re ill, trying to help them, and trying to learn from them. So that they can feel better, so that I can feel better, yes, but also so that anyone could feel better. It’s the principle that matters, not my particular happiness. It’s that my brothers don’t grasp that principle that makes me feel like my life is pointless and thus that life is pointless (their lives included, especially). I want to be happy, but I want them to want me to be happy more. Not just for me, but because it’s the right thing. I want them to get that one point. That being strong means going through hard things but remaining good. That the glory we can achieve in this life and the purpose we can find in some grand picture of some complex design cannot matter if there are people who are left in our wake starving, dying, and being killed. We can’t prescribe universal rights unless everyone has access to them. The world is harsh and life is often very difficult and unforgiving, but if people are good, and get that one main principle (being moral, and virtuous and supporting and learning from others) than even the most apparently meaningless fate can be transformed into the most meaningful one.